231st ENMC International Workshop:   International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

doi:10.1016/j.nmd.2017.10.009

231st ENMC International Workshop: International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

College of Health and Life Sciences

Academic Medical Centre, University of Amsterdam
Erasmus University Medical Center
Universitat Autònoma de Barcelona
London
Curaçao

Research output: Contribution to journal › Article › peer-review

10 Citations (Scopus)

Abstract

Highlights
• International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP.
• Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials.
• Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.

Original language	English
Pages (from-to)	178-184
Number of pages	7
Journal	Neuromuscular Disorders
Volume	28
Issue number	2
DOIs	https://doi.org/10.1016/j.nmd.2017.10.009
Publication status	Published - 1 Feb 2018

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10.1016/j.nmd.2017.10.009

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@article{443dcbf5b23d43cc9deada7d4cde2cb6,

title = "231st ENMC International Workshop: International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017",

abstract = "Highlights • International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP. • Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials. • Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.",

author = "Filip Eftimov and Carina Bunschoten and Yusuf Rajabally and Luis Querol and Adrichem, \{Max E.\} and Jeffrey Allen and Antoine, \{Jean Cristophe\} and Ivana Basta and \{Van den Bergh\}, Peter and Patricia Blomkwist-Markens and Alexandra Breukel and Carina Bunschoten and David Cornblath and Kathrin Doppler and Filip Eftimov and Stephan Goedee and Robert Hadden and Thomas Harbo and Hiew, \{Fu Liong\} and Jacobs, \{Bart C.\} and Helmar Lehmann and Lunn, \{Michael P.\} and Merkies, \{Ingemar S.J.\} and Eduardo Nobile-Orazio and Luis Querol and Yusuf Rajabally and Stephen Reddel and Vallat, \{Jean Michel\} and Antonino Uncini",

year = "2018",

month = feb,

day = "1",

doi = "10.1016/j.nmd.2017.10.009",

language = "English",

volume = "28",

pages = "178--184",

number = "2",

}

TY - JOUR

T1 - 231st ENMC International Workshop

T2 - International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

AU - Eftimov, Filip

AU - Bunschoten, Carina

AU - Rajabally, Yusuf

AU - Querol, Luis

AU - Adrichem, Max E.

AU - Allen, Jeffrey

AU - Antoine, Jean Cristophe

AU - Basta, Ivana

AU - Van den Bergh, Peter

AU - Blomkwist-Markens, Patricia

AU - Breukel, Alexandra

AU - Bunschoten, Carina

AU - Cornblath, David

AU - Doppler, Kathrin

AU - Eftimov, Filip

AU - Goedee, Stephan

AU - Hadden, Robert

AU - Harbo, Thomas

AU - Hiew, Fu Liong

AU - Jacobs, Bart C.

AU - Lehmann, Helmar

AU - Lunn, Michael P.

AU - Merkies, Ingemar S.J.

AU - Nobile-Orazio, Eduardo

AU - Querol, Luis

AU - Rajabally, Yusuf

AU - Reddel, Stephen

AU - Vallat, Jean Michel

AU - Uncini, Antonino

PY - 2018/2/1

Y1 - 2018/2/1

N2 - Highlights • International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP. • Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials. • Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.

AB - Highlights • International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP. • Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials. • Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.

UR - https://www.scopus.com/pages/publications/85039779398

UR - https://www.sciencedirect.com/science/article/pii/S0960896617312518?via%3Dihub

U2 - 10.1016/j.nmd.2017.10.009

DO - 10.1016/j.nmd.2017.10.009

M3 - Article

C2 - 29305135

AN - SCOPUS:85039779398

SN - 0960-8966

VL - 28

SP - 178

EP - 184

JO - Neuromuscular Disorders

JF - Neuromuscular Disorders

IS - 2

ER -

231st ENMC International Workshop: International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

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