231st ENMC International Workshop:   International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

doi:10.1016/j.nmd.2017.10.009

231st ENMC International Workshop: International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

College of Health and Life Sciences

Research output: Contribution to journal › Article › peer-review

Abstract

Highlights
• International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP.
• Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials.
• Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.

Original language	English
Pages (from-to)	178-184
Number of pages	7
Journal	Neuromuscular Disorders
Volume	28
Issue number	2
DOIs	https://doi.org/10.1016/j.nmd.2017.10.009
Publication status	Published - 1 Feb 2018

Access to Document

10.1016/j.nmd.2017.10.009

Cite this

@article{443dcbf5b23d43cc9deada7d4cde2cb6,

title = "231st ENMC International Workshop: International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017",

abstract = "Highlights • International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP. • Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials. • Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.",

author = "Filip Eftimov and Carina Bunschoten and Yusuf Rajabally and Luis Querol and Adrichem, {Max E.} and Jeffrey Allen and Antoine, {Jean Cristophe} and Ivana Basta and {Van den Bergh}, Peter and Patricia Blomkwist-Markens and Alexandra Breukel and Carina Bunschoten and David Cornblath and Kathrin Doppler and Filip Eftimov and Stephan Goedee and Robert Hadden and Thomas Harbo and Hiew, {Fu Liong} and Jacobs, {Bart C.} and Helmar Lehmann and Lunn, {Michael P.} and Merkies, {Ingemar S.J.} and Eduardo Nobile-Orazio and Luis Querol and Yusuf Rajabally and Stephen Reddel and Vallat, {Jean Michel} and Antonino Uncini",

year = "2018",

month = feb,

day = "1",

doi = "10.1016/j.nmd.2017.10.009",

language = "English",

volume = "28",

pages = "178--184",

number = "2",

}

TY - JOUR

T1 - 231st ENMC International Workshop

T2 - International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

AU - Eftimov, Filip

AU - Bunschoten, Carina

AU - Rajabally, Yusuf

AU - Querol, Luis

AU - Adrichem, Max E.

AU - Allen, Jeffrey

AU - Antoine, Jean Cristophe

AU - Basta, Ivana

AU - Van den Bergh, Peter

AU - Blomkwist-Markens, Patricia

AU - Breukel, Alexandra

AU - Bunschoten, Carina

AU - Cornblath, David

AU - Doppler, Kathrin

AU - Eftimov, Filip

AU - Goedee, Stephan

AU - Hadden, Robert

AU - Harbo, Thomas

AU - Hiew, Fu Liong

AU - Jacobs, Bart C.

AU - Lehmann, Helmar

AU - Lunn, Michael P.

AU - Merkies, Ingemar S.J.

AU - Nobile-Orazio, Eduardo

AU - Querol, Luis

AU - Rajabally, Yusuf

AU - Reddel, Stephen

AU - Vallat, Jean Michel

AU - Uncini, Antonino

PY - 2018/2/1

Y1 - 2018/2/1

N2 - Highlights • International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP. • Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials. • Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.

AB - Highlights • International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP. • Consensus was reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials. • Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.

UR - http://www.scopus.com/inward/record.url?scp=85039779398&partnerID=8YFLogxK

UR - https://www.sciencedirect.com/science/article/pii/S0960896617312518?via%3Dihub

U2 - 10.1016/j.nmd.2017.10.009

DO - 10.1016/j.nmd.2017.10.009

M3 - Article

C2 - 29305135

AN - SCOPUS:85039779398

SN - 0960-8966

VL - 28

SP - 178

EP - 184

JO - Neuromuscular Disorders

JF - Neuromuscular Disorders

IS - 2

ER -

231st ENMC International Workshop: International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017

Abstract

Access to Document

Other files and links

Fingerprint

Cite this