Abstract
Stroke is a leading cause of complex disability, with many survivors experiencing mobility, cognitive and/or speech and language impairment. This paper explores the relationship between biographical disruption and body studies through experiences of informal care in stroke. Drawing on narratives from 41 interviews with stroke survivors and their wider support network, we use Michael Bury's concept of ‘biographical disruption’ alongside body studies theorists to construct a framework to understand the role of embodiment within biographical disruption. We draw on Victoria Cluley and colleagues' concept of ‘biographical dialectics’ to reveal, through our data, an ‘embodied dialectics’, where past and present embodied experiences of chronic illness exist in a productive tension. We identify three distinct but interlinking aspects: (i) contradictions between past, present and future embodied understandings are generative, leading individuals to produce new forms of embodied knowledge; (ii) tensions create motion, ensuring ongoing dialectical processes that generate creative adaptations and conversations in relation to informal care and embodied practices post-stroke and (iii) these processes are ongoing as the competing demands of autonomy and dependence continue to generate new challenges. In doing so, we highlight the roles of socio-cultural practices and expectations in shaping individual and collective embodied understandings of illness and subsequent disruption.
| Original language | English |
|---|---|
| Article number | e70113 |
| Number of pages | 10 |
| Journal | Sociology of Health Illness |
| Volume | 47 |
| Issue number | 8 |
| Early online date | 6 Nov 2025 |
| DOIs | |
| Publication status | Published - 6 Nov 2025 |
Bibliographical note
Copyright © 2025 The Author(s). Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for the Sociology of Health & Illness.This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Data Access Statement
The datasets generated and analysed during the study are not publicly available but may be available from the corresponding author on reasonable request.Funding
This project is funded by the National Institute for Health and Care Research (NIHR) under its Programme Grants for Applied Research (NIHR202339) and is supported by the NIHR Applied Research Collaboration (ARC) South London at King's College Hospital NHS Foundation Trust. The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.
Keywords
- biographical disruption
- embodied dialectic
- informal care
- stroke