Centralization of cleft care in the UK. Part 6: a tale of two studies

A.R. Ness, A.K. Wills, A. Waylen, R. Al-Ghatam, T.E.M. Jones, R. Preston, A.J. Ireland, M. Persson, J. Smallridge, A.J. Hall, D. Sell, J.R. Sandy

Research output: Contribution to journalSpecial issue

Abstract

OBJECTIVES: We summarize and critique the methodology and outcomes from a substantial study which has investigated the impact of reconfigured cleft care in the United Kingdom (UK) 15 years after the UK government started to implement the centralization of cleft care in response to an earlier survey in 1998, the Clinical Standards Advisory Group (CSAG).

SETTING AND SAMPLE POPULATION: A UK multicentre cross-sectional study of 5-year-olds born with non-syndromic unilateral cleft lip and palate. Data were collected from children born in the UK with a unilateral cleft lip and palate between 1 April 2005 and 31 March 2007.

MATERIALS AND METHODS: We discuss and contextualize the outcomes from speech recordings, hearing, photographs, models, oral health and psychosocial factors in the current study. We refer to the earlier survey and other relevant studies.

RESULTS: We present arguments for centralization of cleft care in healthcare systems, and we evidence this with improvements seen over a period of 15 years in the UK. We also make recommendations on how future audit and research may configure.

CONCLUSIONS: Outcomes for children with a unilateral cleft lip and palate have improved after the introduction of a centralized multidisciplinary service, and other countries may benefit from this model. Predictors of early outcomes are still needed, and repeated cross-sectional studies, larger longitudinal studies and adequately powered trials are required to create a research-led evidence-based (centralized) service.

Original languageEnglish
Pages (from-to)56-62
Number of pages7
JournalOrthodontics & craniofacial research
Volume18
Issue numberSuppl.2
DOIs
Publication statusPublished - Nov 2015

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Cleft Lip
Cleft Palate
Cross-Sectional Studies
Oral Health
Research
Hearing
Longitudinal Studies
United Kingdom
Psychology
Delivery of Health Care
Population
Surveys and Questionnaires

Bibliographical note

© 2015 The Authors. Orthodontics & Craniofacial Research Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

Keywords

  • Journal Article
  • Research Support, Non-U.S. Gov't

Cite this

Ness, A. R., Wills, A. K., Waylen, A., Al-Ghatam, R., Jones, T. E. M., Preston, R., ... Sandy, J. R. (2015). Centralization of cleft care in the UK. Part 6: a tale of two studies. Orthodontics & craniofacial research, 18(Suppl.2), 56-62. https://doi.org/10.1111/ocr.12111
Ness, A.R. ; Wills, A.K. ; Waylen, A. ; Al-Ghatam, R. ; Jones, T.E.M. ; Preston, R. ; Ireland, A.J. ; Persson, M. ; Smallridge, J. ; Hall, A.J. ; Sell, D. ; Sandy, J.R. / Centralization of cleft care in the UK. Part 6 : a tale of two studies. In: Orthodontics & craniofacial research. 2015 ; Vol. 18, No. Suppl.2. pp. 56-62.
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abstract = "OBJECTIVES: We summarize and critique the methodology and outcomes from a substantial study which has investigated the impact of reconfigured cleft care in the United Kingdom (UK) 15 years after the UK government started to implement the centralization of cleft care in response to an earlier survey in 1998, the Clinical Standards Advisory Group (CSAG).SETTING AND SAMPLE POPULATION: A UK multicentre cross-sectional study of 5-year-olds born with non-syndromic unilateral cleft lip and palate. Data were collected from children born in the UK with a unilateral cleft lip and palate between 1 April 2005 and 31 March 2007.MATERIALS AND METHODS: We discuss and contextualize the outcomes from speech recordings, hearing, photographs, models, oral health and psychosocial factors in the current study. We refer to the earlier survey and other relevant studies.RESULTS: We present arguments for centralization of cleft care in healthcare systems, and we evidence this with improvements seen over a period of 15 years in the UK. We also make recommendations on how future audit and research may configure.CONCLUSIONS: Outcomes for children with a unilateral cleft lip and palate have improved after the introduction of a centralized multidisciplinary service, and other countries may benefit from this model. Predictors of early outcomes are still needed, and repeated cross-sectional studies, larger longitudinal studies and adequately powered trials are required to create a research-led evidence-based (centralized) service.",
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Ness, AR, Wills, AK, Waylen, A, Al-Ghatam, R, Jones, TEM, Preston, R, Ireland, AJ, Persson, M, Smallridge, J, Hall, AJ, Sell, D & Sandy, JR 2015, 'Centralization of cleft care in the UK. Part 6: a tale of two studies', Orthodontics & craniofacial research, vol. 18, no. Suppl.2, pp. 56-62. https://doi.org/10.1111/ocr.12111

Centralization of cleft care in the UK. Part 6 : a tale of two studies. / Ness, A.R.; Wills, A.K.; Waylen, A.; Al-Ghatam, R.; Jones, T.E.M.; Preston, R.; Ireland, A.J.; Persson, M.; Smallridge, J.; Hall, A.J.; Sell, D.; Sandy, J.R.

In: Orthodontics & craniofacial research, Vol. 18, No. Suppl.2, 11.2015, p. 56-62.

Research output: Contribution to journalSpecial issue

TY - JOUR

T1 - Centralization of cleft care in the UK. Part 6

T2 - a tale of two studies

AU - Ness, A.R.

AU - Wills, A.K.

AU - Waylen, A.

AU - Al-Ghatam, R.

AU - Jones, T.E.M.

AU - Preston, R.

AU - Ireland, A.J.

AU - Persson, M.

AU - Smallridge, J.

AU - Hall, A.J.

AU - Sell, D.

AU - Sandy, J.R.

N1 - © 2015 The Authors. Orthodontics & Craniofacial Research Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

PY - 2015/11

Y1 - 2015/11

N2 - OBJECTIVES: We summarize and critique the methodology and outcomes from a substantial study which has investigated the impact of reconfigured cleft care in the United Kingdom (UK) 15 years after the UK government started to implement the centralization of cleft care in response to an earlier survey in 1998, the Clinical Standards Advisory Group (CSAG).SETTING AND SAMPLE POPULATION: A UK multicentre cross-sectional study of 5-year-olds born with non-syndromic unilateral cleft lip and palate. Data were collected from children born in the UK with a unilateral cleft lip and palate between 1 April 2005 and 31 March 2007.MATERIALS AND METHODS: We discuss and contextualize the outcomes from speech recordings, hearing, photographs, models, oral health and psychosocial factors in the current study. We refer to the earlier survey and other relevant studies.RESULTS: We present arguments for centralization of cleft care in healthcare systems, and we evidence this with improvements seen over a period of 15 years in the UK. We also make recommendations on how future audit and research may configure.CONCLUSIONS: Outcomes for children with a unilateral cleft lip and palate have improved after the introduction of a centralized multidisciplinary service, and other countries may benefit from this model. Predictors of early outcomes are still needed, and repeated cross-sectional studies, larger longitudinal studies and adequately powered trials are required to create a research-led evidence-based (centralized) service.

AB - OBJECTIVES: We summarize and critique the methodology and outcomes from a substantial study which has investigated the impact of reconfigured cleft care in the United Kingdom (UK) 15 years after the UK government started to implement the centralization of cleft care in response to an earlier survey in 1998, the Clinical Standards Advisory Group (CSAG).SETTING AND SAMPLE POPULATION: A UK multicentre cross-sectional study of 5-year-olds born with non-syndromic unilateral cleft lip and palate. Data were collected from children born in the UK with a unilateral cleft lip and palate between 1 April 2005 and 31 March 2007.MATERIALS AND METHODS: We discuss and contextualize the outcomes from speech recordings, hearing, photographs, models, oral health and psychosocial factors in the current study. We refer to the earlier survey and other relevant studies.RESULTS: We present arguments for centralization of cleft care in healthcare systems, and we evidence this with improvements seen over a period of 15 years in the UK. We also make recommendations on how future audit and research may configure.CONCLUSIONS: Outcomes for children with a unilateral cleft lip and palate have improved after the introduction of a centralized multidisciplinary service, and other countries may benefit from this model. Predictors of early outcomes are still needed, and repeated cross-sectional studies, larger longitudinal studies and adequately powered trials are required to create a research-led evidence-based (centralized) service.

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

U2 - 10.1111/ocr.12111

DO - 10.1111/ocr.12111

M3 - Special issue

C2 - 26567856

VL - 18

SP - 56

EP - 62

IS - Suppl.2

ER -

Ness AR, Wills AK, Waylen A, Al-Ghatam R, Jones TEM, Preston R et al. Centralization of cleft care in the UK. Part 6: a tale of two studies. Orthodontics & craniofacial research. 2015 Nov;18(Suppl.2):56-62. https://doi.org/10.1111/ocr.12111