Co-constructed caring research and intellectual disability: an exploration of friendship, intimacy and being human

Chrissie Rogers, Sherrie Tuckwell

Research output: Contribution to journalArticlepeer-review

Abstract

For this paper, emotional and socio-political questions lie at the heart of relationships in understanding intellectual disability and what it is to be a human. While the sexual and intimate is more often than not based on a private and personal relationship with the self and (an)other, the sexual and intimate life of intellectually disabled people is more often a ‘public’ affair governed by parents and/or carers, destabilizing what we might consider ethical and caring practices. In the socio-political sphere, as an all-encompassing ‘care space’, social intolerance and aversion to difficult differences are played out, impacting
upon the intimate lives of intellectually disabled people. As co-researchers (one intellectually disabled and one ‘non-disabled’), we discuss narratives from a small scale research project and our personal reflections. In sociological research and more specifically within disability research it is clear that we need to keep sex and intimacy on the agenda, yet also find ways of doing research in a meaningful, caring and co-constructed way.
Original languageEnglish
Pages (from-to)623-640
Number of pages18
JournalSexualities
VolumeEarly online
Early online date2 Jun 2016
DOIs
Publication statusPublished - Sep 2016

Keywords

  • care ethics
  • co-constructed research
  • friendship
  • intellectual disability
  • intimacy
  • participatory research

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