Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study

Shanara Abdin; Gemma Heath; Sue Neilson; James Byron-Daniel; Nic Hooper

doi:10.1111/cch.12956

Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study

Shanara Abdin^*, Gemma Heath, Sue Neilson, James Byron-Daniel, Nic Hooper

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

Objective: To explore factors that influence professionals in deciding whether to withdraw treatment from a child and how decision making is managed amongst professionals as an individual and as a team. Study Design: Semi-structured interviews were conducted with a purposive sample of health professionals working at a UK Children's Hospital, with children with life-limiting illnesses whose treatment has been withdrawn. Data were transcribed verbatim, anonymized and analysed using a thematic framework method. Results: A total of 15 participants were interviewed. Five interrelated themes with associated subthemes were generated to help understand the experiences of health professionals in decision making on withdrawing a child's treatment: (1) understanding the child's best interests, (2) multidisciplinary approach, (3) external factors, (4) psychological well-being and (5) recommendations to support shared decision making. Conclusion: A shared decision-making approach should be adopted to support professionals, children and their families to make decisions collectively.

Original language	English
Pages (from-to)	531-543
Number of pages	13
Journal	Child: Care, Health and Development
Volume	48
Issue number	4
Early online date	6 Jan 2022
DOIs	https://doi.org/10.1111/cch.12956
Publication status	Published - Jul 2022

Bibliographical note

This is the peer reviewed version of the following article: Abdin, S, Heath, G, Neilson, S, Byron-Daniel, J, Hooper, N. Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study. Child Care Health Dev. 2022. Accepted Author Manuscript, which has been published in final form at https://doi.org/10.1111/cch.12956. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited

Keywords

decision making
healthcare
professionals
treatment

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10.1111/cch.12956

Decision-making experiences of health professionals
This is the peer reviewed version of the following article: Abdin, S, Heath, G, Neilson, S, Byron-Daniel, J, Hooper, N. Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study. Child Care Health Dev. 2022. Accepted Author Manuscript, which has been published in final form at https://doi.org/10.1111/cch.12956. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited
Accepted author manuscript, 384 KB

Cite this

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abstract = "Objective: To explore factors that influence professionals in deciding whether to withdraw treatment from a child and how decision making is managed amongst professionals as an individual and as a team. Study Design: Semi-structured interviews were conducted with a purposive sample of health professionals working at a UK Children's Hospital, with children with life-limiting illnesses whose treatment has been withdrawn. Data were transcribed verbatim, anonymized and analysed using a thematic framework method. Results: A total of 15 participants were interviewed. Five interrelated themes with associated subthemes were generated to help understand the experiences of health professionals in decision making on withdrawing a child's treatment: (1) understanding the child's best interests, (2) multidisciplinary approach, (3) external factors, (4) psychological well-being and (5) recommendations to support shared decision making. Conclusion: A shared decision-making approach should be adopted to support professionals, children and their families to make decisions collectively.",

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Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study

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Keywords

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