Distress and challenging behavior in people with profound or severe intellectual disability and complex needs: Assessment of causes and evaluation of intervention outcomes

Chris Oliver, Katherine Ellis, Georgie Agar, Stacey Bissell, Justin Cheuk Yin Chung, Hayley Crawford, Effie Pearson, Kelly Wade, Jane Waite, Debbie Allen, Lucy Deeprose, Georgina Edwards, Lauren Jenner, Breanne Kearney, Lauren Shelley, Kayla Smith, Hayley Trower, Dawn Adams, Louise Daniel, Laura GrovesMary Heald, Joanna Moss, Caroline Richards, Rachel Royston, Joanne Tarver, Alice Welham, Lucy Wilde, Kate Woodcock

Research output: Chapter in Book/Published conference outputChapter

Abstract

Previously, we have proposed that there are nine domains that warrant assessment when intervening to decrease challenging behavior and\or increase well-being in people with profound or severe intellectual disability and complex needs. These domains are: pain and discomfort, sensory sensitivity, anxiety and low mood, sleep, emotional dysregulation, cognitive difference, learned or functional behaviors, and expressive communication. In this article we: (1) identify specific challenging behaviors that might be influenced by these domains, (2) describe the relationship between these domains and the specified challenging behaviors, (3) identify assessments for each domain and (4) describe interactions between the domains. Our aim in this article is to provide practitioners with a framework for assessment and to stimulate debate about the domains that are demonstrably important when considering challenging behavior and well-being in people with profound or severe intellectual disability and complex needs.
Original languageEnglish
Title of host publicationContemporary Issues in Evaluating Treatment Outcomes in Neurodevelopmental Disorders
EditorsAnna J. Esbensen, Emily K. Schworer
Chapter4
Pages109-189
Volume62
DOIs
Publication statusPublished - 24 Sep 2022

Publication series

NameInternational Review of Research in Developmental Disabilities
Volume62
ISSN (Print)2211-6095

Keywords

  • Challenging behavior
  • Intellectual disability
  • Autism spectrum disorder
  • Sleep
  • Anxiety
  • Sensory sensitivity
  • Pain
  • Functional analysis
  • Assessment
  • Communication

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