Abstract
Healthcare research globally has seen a renewed shift to increase diversity in research participation. People previously excluded from the production of biomedical knowledge, and often labelled ‘underserved’, are now a focus of attention. In this paper we discuss an in-depth interview study in South London which aimed to better understand how the very public era of COVID-19 research has affected people's trust, opinions and relationships with health research, focusing on hearing from those with intersectional experiences of inequality and injustice. We suggest that ‘underserved’, much like ‘diversity’, obscures historically rooted injustice with narratives of what Chandra Talpade Mohanty calls ‘benign variation’ and assumptions that health research has always worked in service to others. Rather, we draw on the work of Sara Ahmed to ensure we take participants' concerns, scepticisms or complaints about research seriously. Drawing on participants' narratives of health injustice, we document how participants embody critical dispositions, which demand more complex understandings of health research that incorporate doubts, nuance and multiple sources. Such accounts render into stark relief the underlying power relations in attempts to simplify research participation narratives. This study demonstrates research institutions need to engage in more complex dialogue with communities in order to be worthy of trust.
| Original language | English |
|---|---|
| Article number | e70110 |
| Number of pages | 13 |
| Journal | Sociology of health and illness |
| Volume | 47 |
| Issue number | 8 |
| Early online date | 7 Nov 2025 |
| DOIs | |
| Publication status | Published - 7 Nov 2025 |
Bibliographical note
Copyright © 2025 The Author(s). Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for the Sociology of Health & Illness.This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Funding
This research was funded by the NIHR South London Clinical Research Network's ‘underserved communities fund’ 2022–2023.
Keywords
- Adult
- Biomedical Research
- COVID-19/epidemiology
- Female
- Humans
- Interviews as Topic
- Male
- Middle Aged
- Qualitative Research
- SARS-CoV-2
- Trust
- United Kingdom