Individual's recollections of their experiences in eye clinics and understanding of their eye condition: results from a survey of visually impaired people in Britain

Graeme Douglas, Sue Pavey, Christine Corcoran, Frank Eperjesi

Research output: Contribution to journalArticle

Abstract

Background/aims: Network 1000 is a UK-based panel survey of a representative sample of adults with registered visual impairment, with the aim of gathering information about people’s opinions and circumstances.
Method: Participants were interviewed (Survey 1, n = 1007: 2005; Survey 2, n = 922: 2006/07) on a range of topics including the nature of their eye condition, details of other health issues, use of low vision aids (LVAs) and their experiences in eye clinics.
Results: Eleven percent of individuals did not know the name of their eye condition. Seventy percent of participants reported having long-term health problems or disabilities in addition to visual impairment and 43% reported having hearing difficulties. Seventy one percent reported using LVAs for reading tasks. Participants who had become registered as visually impaired in the previous 8 years (n = 395) were asked questions about non-medical information received in the eye clinic around that time. Reported information received included advice about ‘registration’ (48%), low vision aids (45%) and social care routes (43%); 17% reported receiving no information. While 70% of people were satisfied with the information received, this was lower for those of working age (56%) compared with retirement age (72%). Those who recalled receiving additional non-medical information and advice at the time of registration also recalled their experiences more positively.
Conclusions: Whilst caution should be applied to the accuracy of recall of past events, the data provide a valuable insight into the types of information and support that visually impaired people feel they would benefit from in the eye clinic.
Original languageEnglish
Pages (from-to)748-757
Number of pages10
JournalOphthalmic and Physiological Optics
Volume30
Issue number6
Early online date10 Jun 2010
DOIs
Publication statusPublished - 18 Nov 2010

Fingerprint

Low Vision
Vision Disorders
Retirement
Health
Hearing
Names
Reading
Surveys and Questionnaires

Bibliographical note

Acknowledgement to the Journal, College of Optometrists and Blackwell Publishing.
The definitive version is available at www.onlinelibrary.wiley.com

Keywords

  • adolescent
  • adult
  • aged
  • Great Britain
  • health knowledge
  • health surveys
  • Humans
  • Mental Recall
  • Middle Aged
  • hospital outpatient clinics
  • patient education as topic
  • reproducibility of results
  • self-help devices
  • vision disorders
  • visually impaired persons
  • young adult

Cite this

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title = "Individual's recollections of their experiences in eye clinics and understanding of their eye condition: results from a survey of visually impaired people in Britain",
abstract = "Background/aims: Network 1000 is a UK-based panel survey of a representative sample of adults with registered visual impairment, with the aim of gathering information about people’s opinions and circumstances.Method: Participants were interviewed (Survey 1, n = 1007: 2005; Survey 2, n = 922: 2006/07) on a range of topics including the nature of their eye condition, details of other health issues, use of low vision aids (LVAs) and their experiences in eye clinics.Results: Eleven percent of individuals did not know the name of their eye condition. Seventy percent of participants reported having long-term health problems or disabilities in addition to visual impairment and 43{\%} reported having hearing difficulties. Seventy one percent reported using LVAs for reading tasks. Participants who had become registered as visually impaired in the previous 8 years (n = 395) were asked questions about non-medical information received in the eye clinic around that time. Reported information received included advice about ‘registration’ (48{\%}), low vision aids (45{\%}) and social care routes (43{\%}); 17{\%} reported receiving no information. While 70{\%} of people were satisfied with the information received, this was lower for those of working age (56{\%}) compared with retirement age (72{\%}). Those who recalled receiving additional non-medical information and advice at the time of registration also recalled their experiences more positively.Conclusions: Whilst caution should be applied to the accuracy of recall of past events, the data provide a valuable insight into the types of information and support that visually impaired people feel they would benefit from in the eye clinic.",
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Individual's recollections of their experiences in eye clinics and understanding of their eye condition : results from a survey of visually impaired people in Britain. / Douglas, Graeme; Pavey, Sue; Corcoran, Christine; Eperjesi, Frank.

In: Ophthalmic and Physiological Optics, Vol. 30, No. 6, 18.11.2010, p. 748-757.

Research output: Contribution to journalArticle

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