Integrating healthcare data for enhanced citizen-centred care and analytics

Juliana K. F.  Bowles; Juan Mendoza-Santana; Andreas F. Vermeulen; Thais Webber; Euan Blackledge

doi:10.3233/SHTI200686

Integrating healthcare data for enhanced citizen-centred care and analytics

Juliana K. F. Bowles^*, Juan Mendoza-Santana, Andreas F. Vermeulen, Thais Webber, Euan Blackledge

^*Corresponding author for this work

Research output: Chapter in Book/Published conference output › Conference publication

Abstract

The potential of healthcare systems worldwide is expanding as new medical devices and data sources are regularly presented to healthcare providers which could be used to personalise, improve and revise treatments further. However, there is presently a large gap between the data collected, the systems that store the data, and any ability to perform big data analytics to combinations of such data. This paper suggests a novel approach to integrate data from multiple sources and formats, by providing a uniform structure to the data in a healthcare data lake with multiple zones reflecting how refined the data is: from raw to curated when ready to be consumed or used for analysis. The integration further requires solutions that can be proven to be secure, such as patient-centric data sharing agreements (smart contracts) on a blockchain, and novel privacy-preserving methods for extracting metadata from data sources, originally derived from partially-structured or from completely unstructured data. Work presented here is being developed as part of an EU project with the ultimate aim to develop solutions for integrating healthcare data for enhanced citizen-centred care and analytics across Europe.

Original language	English
Title of host publication	Integrated Citizen Centered Digital Health and Social Care
Subtitle of host publication	Citizens as Data Producers and Service co-Creators - Proceedings of the EFMI 2020 Special Topic Conference
Editors	Alpo Varri, Jaime Delgado, Parisis Gallos, Maria Hagglund, Kristiina Hayrinen, Ulla-Mari Kinnunen, Louise B. Pape-Haugaard, Laura-Maria Peltonen, Kaija Saranto, Philip Scott
Pages	17-21
Number of pages	5
ISBN (Electronic)	9781643681443
DOIs	https://doi.org/10.3233/SHTI200686
Publication status	Published - 23 Nov 2020
Event	EFMI 2020 Special Topic Conference on Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators - Virtual, Online Duration: 26 Nov 2020 → 27 Nov 2020

Publication series

Name	Studies in Health Technology and Informatics
Volume	275
ISSN (Print)	0926-9630
ISSN (Electronic)	1879-8365

Conference

Conference	EFMI 2020 Special Topic Conference on Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators
City	Virtual, Online
Period	26/11/20 → 27/11/20

Bibliographical note

Funding Information:
This research is funded by the EU H2020 project SERUMS: Securing Medical Data in Smart Patient-Centric Healthcare Systems (grant code 826278).

Publisher Copyright:
© 2020 The European Federation for Medical Informatics (EFMI) and IOS Press.

Keywords

Blockchain
Data analytics
Data lake
Healthcare
Integration

Access to Document

10.3233/SHTI200686

https://research-repository.st-andrews.ac.uk/handle/10023/21056Licence: CC BY-NC 4.0

Cite this

Bowles, J. K. F., Mendoza-Santana, J., Vermeulen, A. F., Webber, T., & Blackledge, E. (2020). Integrating healthcare data for enhanced citizen-centred care and analytics. In A. Varri, J. Delgado, P. Gallos, M. Hagglund, K. Hayrinen, U.-M. Kinnunen, L. B. Pape-Haugaard, L.-M. Peltonen, K. Saranto, & P. Scott (Eds.), Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators - Proceedings of the EFMI 2020 Special Topic Conference (pp. 17-21). (Studies in Health Technology and Informatics; Vol. 275). https://doi.org/10.3233/SHTI200686

Bowles, Juliana K. F. ; Mendoza-Santana, Juan ; Vermeulen, Andreas F. et al. / Integrating healthcare data for enhanced citizen-centred care and analytics. Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators - Proceedings of the EFMI 2020 Special Topic Conference. editor / Alpo Varri ; Jaime Delgado ; Parisis Gallos ; Maria Hagglund ; Kristiina Hayrinen ; Ulla-Mari Kinnunen ; Louise B. Pape-Haugaard ; Laura-Maria Peltonen ; Kaija Saranto ; Philip Scott. 2020. pp. 17-21 (Studies in Health Technology and Informatics).

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title = "Integrating healthcare data for enhanced citizen-centred care and analytics",

abstract = "The potential of healthcare systems worldwide is expanding as new medical devices and data sources are regularly presented to healthcare providers which could be used to personalise, improve and revise treatments further. However, there is presently a large gap between the data collected, the systems that store the data, and any ability to perform big data analytics to combinations of such data. This paper suggests a novel approach to integrate data from multiple sources and formats, by providing a uniform structure to the data in a healthcare data lake with multiple zones reflecting how refined the data is: from raw to curated when ready to be consumed or used for analysis. The integration further requires solutions that can be proven to be secure, such as patient-centric data sharing agreements (smart contracts) on a blockchain, and novel privacy-preserving methods for extracting metadata from data sources, originally derived from partially-structured or from completely unstructured data. Work presented here is being developed as part of an EU project with the ultimate aim to develop solutions for integrating healthcare data for enhanced citizen-centred care and analytics across Europe.",

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author = "Bowles, {Juliana K. F.} and Juan Mendoza-Santana and Vermeulen, {Andreas F.} and Thais Webber and Euan Blackledge",

note = "Funding Information: This research is funded by the EU H2020 project SERUMS: Securing Medical Data in Smart Patient-Centric Healthcare Systems (grant code 826278). Publisher Copyright: {\textcopyright} 2020 The European Federation for Medical Informatics (EFMI) and IOS Press.; EFMI 2020 Special Topic Conference on Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators ; Conference date: 26-11-2020 Through 27-11-2020",

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editor = "Alpo Varri and Jaime Delgado and Parisis Gallos and Maria Hagglund and Kristiina Hayrinen and Ulla-Mari Kinnunen and Pape-Haugaard, {Louise B.} and Laura-Maria Peltonen and Kaija Saranto and Philip Scott",

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Bowles, JKF, Mendoza-Santana, J, Vermeulen, AF, Webber, T & Blackledge, E 2020, Integrating healthcare data for enhanced citizen-centred care and analytics. in A Varri, J Delgado, P Gallos, M Hagglund, K Hayrinen, U-M Kinnunen, LB Pape-Haugaard, L-M Peltonen, K Saranto & P Scott (eds), Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators - Proceedings of the EFMI 2020 Special Topic Conference. Studies in Health Technology and Informatics, vol. 275, pp. 17-21, EFMI 2020 Special Topic Conference on Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators, Virtual, Online, 26/11/20. https://doi.org/10.3233/SHTI200686

Integrating healthcare data for enhanced citizen-centred care and analytics. / Bowles, Juliana K. F. ; Mendoza-Santana, Juan; Vermeulen, Andreas F. et al.
Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators - Proceedings of the EFMI 2020 Special Topic Conference. ed. / Alpo Varri; Jaime Delgado; Parisis Gallos; Maria Hagglund; Kristiina Hayrinen; Ulla-Mari Kinnunen; Louise B. Pape-Haugaard; Laura-Maria Peltonen; Kaija Saranto; Philip Scott. 2020. p. 17-21 (Studies in Health Technology and Informatics; Vol. 275).

Research output: Chapter in Book/Published conference output › Conference publication

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AU - Vermeulen, Andreas F.

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AU - Blackledge, Euan

N1 - Funding Information: This research is funded by the EU H2020 project SERUMS: Securing Medical Data in Smart Patient-Centric Healthcare Systems (grant code 826278). Publisher Copyright: © 2020 The European Federation for Medical Informatics (EFMI) and IOS Press.

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Bowles JKF, Mendoza-Santana J, Vermeulen AF, Webber T, Blackledge E. Integrating healthcare data for enhanced citizen-centred care and analytics. In Varri A, Delgado J, Gallos P, Hagglund M, Hayrinen K, Kinnunen UM, Pape-Haugaard LB, Peltonen LM, Saranto K, Scott P, editors, Integrated Citizen Centered Digital Health and Social Care: Citizens as Data Producers and Service co-Creators - Proceedings of the EFMI 2020 Special Topic Conference. 2020. p. 17-21. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI200686

Integrating healthcare data for enhanced citizen-centred care and analytics

Abstract

Publication series

Conference

Bibliographical note

Keywords

Access to Document

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