Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review

Samantha Flynn, L Vereenooghe, Richard Hastings, Dawn Adams, Sally-Anne Cooper, Nick Gore, Chris Hatton, Kerry Hood, Andrew Jahoda, Langdon P E, R McNamara, Chris Oliver, Ashok Roy, Vasiliki Totsika, Jane Waite

Research output: Contribution to journalReview article

Abstract

Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n=41,232) and full-text articles (n=573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.
LanguageEnglish
Pages32-44
JournalClinical Psychology Review
Volume57
Early online date11 Aug 2017
DOIs
Publication statusPublished - Nov 2017

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Intellectual Disability
Mental Health
Disabled Persons
Pleasure
Proxy
Checklist
Psychometrics
Population
Publications
Databases
Research

Bibliographical note

© 2017, Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/

Cite this

Flynn, Samantha ; Vereenooghe, L ; Hastings, Richard ; Adams, Dawn ; Cooper, Sally-Anne ; Gore, Nick ; Hatton, Chris ; Hood, Kerry ; Jahoda, Andrew ; P E, Langdon ; McNamara, R ; Oliver, Chris ; Roy, Ashok ; Totsika, Vasiliki ; Waite, Jane. / Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. In: Clinical Psychology Review. 2017 ; Vol. 57. pp. 32-44.
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Flynn, S, Vereenooghe, L, Hastings, R, Adams, D, Cooper, S-A, Gore, N, Hatton, C, Hood, K, Jahoda, A, P E, L, McNamara, R, Oliver, C, Roy, A, Totsika, V & Waite, J 2017, 'Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review' Clinical Psychology Review, vol. 57, pp. 32-44. https://doi.org/10.1016/j.cpr.2017.08.006

Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. / Flynn, Samantha; Vereenooghe, L; Hastings, Richard; Adams, Dawn; Cooper, Sally-Anne; Gore, Nick ; Hatton, Chris ; Hood, Kerry; Jahoda, Andrew; P E, Langdon; McNamara, R; Oliver, Chris ; Roy, Ashok; Totsika, Vasiliki; Waite, Jane.

In: Clinical Psychology Review, Vol. 57, 11.2017, p. 32-44.

Research output: Contribution to journalReview article

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AU - Vereenooghe, L

AU - Hastings, Richard

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AU - Cooper, Sally-Anne

AU - Gore, Nick

AU - Hatton, Chris

AU - Hood, Kerry

AU - Jahoda, Andrew

AU - P E, Langdon

AU - McNamara, R

AU - Oliver, Chris

AU - Roy, Ashok

AU - Totsika, Vasiliki

AU - Waite, Jane

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