Perspectives of carers on medication management in dementia: lessons from collaboratively developing a research proposal

Fiona Poland, Sarah Mapes, Hilary Pinnock, Cornelius Katona, Susanne Sorensen, Chris Fox, Ian D. Maidment

Research output: Contribution to journalArticle

Abstract

Background: The need for carers to manage medication-related problems for people with dementia living in the community raises dilemmas, which can be identified by carers and people with dementia as key issues for developing carer-relevant research projects.A research planning Public Patient Involvement (PPI) workshop using adapted focus group methodology was held at the Alzheimer's Society's national office, involving carers of people with dementia who were current members of the Alzheimer's Society Research Network (ASRN) in dialogue with health professionals aimed to identify key issues in relation to medication management in dementia from the carer viewpoint. The group was facilitated by a specialist mental health pharmacist, using a topic guide developed systematically with carers, health professionals and researchers. Audio-recordings and field notes were made at the time and were transcribed and analysed thematically. The participants included nine carers in addition to academics, clinicians, and staff from DeNDRoN (Dementias and Neurodegenerative Diseases Research Network) and the Alzheimer's Society. Findings. Significant themes, for carers, which emerged from the workshop were related to: (1) medication usage and administration practicalities, (2) communication barriers and facilitators, (3) bearing and sharing responsibility and (4) weighing up medication risks and benefits. These can form the basis for more in-depth qualitative research involving a broader, more diverse sample. Discussion. The supported discussion enabled carer voices and perspectives to be expressed and to be linked to the process of identifying problems in medications management as directly experienced by carers. This was used to inform an agenda for research proposals which would be meaningful for carers and people with dementia. © 2014 Poland et al.; licensee BioMed Central Ltd.

LanguageEnglish
Article number463
Number of pages10
JournalBMC Research Notes
Volume7
Issue number1
DOIs
Publication statusPublished - 21 Jul 2014

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Caregivers
Dementia
Research Design
Health
Bearings (structural)
Audio recordings
Neurodegenerative diseases
Research
Weighing
Communication Barriers
Education
Patient Participation
Planning
Qualitative Research
Communication
Focus Groups
Pharmacists
Neurodegenerative Diseases
Mental Health
Research Personnel

Bibliographical note

© 2014 Poland et al.; licensee BioMed Central Ltd.
This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

Keywords

  • dementia
  • family carers
  • medicines management
  • service user engagement

Cite this

Poland, Fiona ; Mapes, Sarah ; Pinnock, Hilary ; Katona, Cornelius ; Sorensen, Susanne ; Fox, Chris ; Maidment, Ian D. / Perspectives of carers on medication management in dementia : lessons from collaboratively developing a research proposal. In: BMC Research Notes. 2014 ; Vol. 7, No. 1.
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Perspectives of carers on medication management in dementia : lessons from collaboratively developing a research proposal. / Poland, Fiona; Mapes, Sarah; Pinnock, Hilary; Katona, Cornelius; Sorensen, Susanne; Fox, Chris; Maidment, Ian D.

In: BMC Research Notes, Vol. 7, No. 1, 463, 21.07.2014.

Research output: Contribution to journalArticle

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