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The Impact on Parents of Diagnosing PCD in Young Children

  • Corine Driessens
  • , Siobhan Carr
  • , Edel Clough
  • , Fiona Copeland
  • , Sharon Dell
  • , Lucy Dixon
  • , Amanda Harris
  • , Rebecca Knibb
  • , Margaret Leigh
  • , Manjith Narayanan
  • , Beatrice Redfern
  • , Evie Robson
  • , Michael Sawras
  • , Lynne Schofield
  • , Kelli Sullivan
  • , Myra Tipping
  • , Nhu Tran
  • , Woolf Walker
  • , Jane S. Lucas
  • , Laura Behan*
  • *Corresponding author for this work
  • University of Southampton Faculty of Medicine, School of Clinical and Experimental Sciences, Southampton SO17 1BJ, UK; NIHR Applied Research Collaboration Wessex, University of Southampton, Southampton SO17 1BJ, UK; Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK
  • Primary Ciliary Dyskinesia Centre, Royal Brompton Harefield Hospital NHS Foundation Trust, London SW3 6NP, UK
  • PCD Support UK, Buckingham MK18 9DX, UK
  • Department of Paediatrics, University of British Columbia, Vancouver, BC V6H 3V4, Canada
  • University of Southampton Faculty of Medicine, School of Clinical and Experimental Sciences, Southampton SO17 1BJ, UK; Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK
  • Department of Paediatrics, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA
  • Leicester National Primary Ciliary Dyskinesia Diagnosis and Management Service, University Hospitals of Leicester NHS Foundation Trust, Leicester LE1 5WW, UK
  • Primary Ciliary Dyskinesia Centre, Leeds Children’s Hospital at Leeds Teaching Hospitals NHS Foundation Trust, Leeds LS1 3EX, UK
  • Hospital for Sick Children (SICKKIDS), University of Toronto, Toronto, ON M5G 1X8, Canada
  • Marsico Lung Institute, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA
  • Primary Ciliary Dyskinesia Centre, University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK
  • University of Southampton Faculty of Medicine, School of Clinical and Experimental Sciences, Southampton SO17 1BJ, UK

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