Understanding Lived Experience-Driven Co-production in Health and Social Services: The Sowing and Growing Model

Gillian Mulvale; Jenn Green; Sandra Moll; Nicoline Vackerberg; Glenn Robert; Michael Larkin; Sofia Kjellström; Puspita Hossain; Le-Tien Bhaskar; Esther Lim; Shioma-Lei Craythorne

doi:10.1016/j.ssmqr.2025.100688

Understanding Lived Experience-Driven Co-production in Health and Social Services: The Sowing and Growing Model

Gillian Mulvale^*, Jenn Green, Sandra Moll, Nicoline Vackerberg, Glenn Robert, Michael Larkin, Sofia Kjellström, Puspita Hossain, Le-Tien Bhaskar, Esther Lim, Shioma-Lei Craythorne

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

Highlights

• Person-centred care is often illusive in traditionally hierarchical systems.
• Co-production equalizes professional and client power by centering lived experience.
• These values mobilize professional and client advocacy driving 5 phases of growth.
• A co-production mindset germinates, sprouts, blossoms, and propagates to new sites.
• A community garden fosters sustainability, helping individual sites weather threats.

Original language	English
Article number	100688
Number of pages	12
Journal	SSM - Qualitative Research in Health
Volume	9
Early online date	16 Dec 2025
DOIs	https://doi.org/10.1016/j.ssmqr.2025.100688
Publication status	E-pub ahead of print - 16 Dec 2025

Bibliographical note

Data Access Statement

The datasets generated and/or analyzed during the current study are not publicly available due to the study program sites' small sample sizes and the key informants’ roles as leaders within small organizations, making it difficult to deidentify their data. However, the datasets are available from the corresponding author upon reasonable request.

All procedures complied with relevant laws and institutional guidelines. Research ethics clearance was provided by the: McMaster Research Ethics Board (MREB# 2066, November 2019), Aston University Research Ethics Committee (REC REF # 1611, February 2020), King's College London Research Ethics Number (Ref# MOD-19/20–17350, July 2020), SingHealth Centralised Institutional Review Board (CIRB Ref# 2020/2341, July 2020), and Swedish Ethics Testing Authority (Etikprövningsmyndighten, Dnr 2019–06373, February 2020). Participants received letters of information outlining the study objectives, protocol, and risks prior to providing written consent. Data was collected and stored locally and shared across sites as anonymized, encrypted, and password-protected files.

Access to Document

10.1016/j.ssmqr.2025.100688Licence: CC BY 4.0

Understanding lived experience-driven co-production in health and social
© 2025 The Authors. Published by Elsevier Ltd. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
Final published version, 3.7 MBLicence: CC BY 4.0

Cite this

Mulvale, G., Green, J., Moll, S., Vackerberg, N., Robert, G., Larkin, M., Kjellström, S., Hossain, P., Bhaskar, L.-T., Lim, E., & Craythorne, S.-L. (2026). Understanding Lived Experience-Driven Co-production in Health and Social Services: The Sowing and Growing Model. SSM - Qualitative Research in Health, 9, Article 100688. Advance online publication. https://doi.org/10.1016/j.ssmqr.2025.100688

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AU - Moll, Sandra

AU - Vackerberg, Nicoline

AU - Robert, Glenn

AU - Larkin, Michael

AU - Kjellström, Sofia

AU - Hossain, Puspita

AU - Bhaskar, Le-Tien

AU - Lim, Esther

AU - Craythorne, Shioma-Lei

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N2 - Highlights • Person-centred care is often illusive in traditionally hierarchical systems. • Co-production equalizes professional and client power by centering lived experience. • These values mobilize professional and client advocacy driving 5 phases of growth. • A co-production mindset germinates, sprouts, blossoms, and propagates to new sites. • A community garden fosters sustainability, helping individual sites weather threats.

AB - Highlights • Person-centred care is often illusive in traditionally hierarchical systems. • Co-production equalizes professional and client power by centering lived experience. • These values mobilize professional and client advocacy driving 5 phases of growth. • A co-production mindset germinates, sprouts, blossoms, and propagates to new sites. • A community garden fosters sustainability, helping individual sites weather threats.

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ER -

Understanding Lived Experience-Driven Co-production in Health and Social Services: The Sowing and Growing Model

Abstract

Bibliographical note

Data Access Statement

Access to Document

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