Validation of the Paediatric food allergy quality of life questionnaire (PFA-QL)

Rebecca C. Knibb, Nur F. Ibrahim, Rachel Petley, Amanda J. Cummings, Rosemary M. King, Graham Roberts, Michel Erlewyn-Lajeunesse, Jane S.A. Lucas

Research output: Contribution to journalArticle

Abstract

Objective - The aim of the current study was to validate child (PFA-QL) and parent–proxy (PFA-QL-PF) versions of the scale in a specialist allergy clinic and in parents of children with food allergy.
Methods - For the clinic sample, a generic QoL scale (PedsQL) and the PFA-QL were completed by 103 children (age 6–16 yrs) with peanut or tree nut allergy; test–retest reliability of the PFA-QL was tested in 50 stable patients. For the non-clinical sample, 756 parents of food allergic children completed the PFA-QL-PF, the Child Health Questionnaire (CHQ-PF50), Food Allergy Quality of Life Parental Burden Scale (FAQL-PB) and a Food Allergy Impact Measure.
Results - The PFA-QL and PFA-QL-PF had good internal consistency (a's of 0.77–0.82), and there was moderate-to-good agreement between the generic- and disease-specific questionnaires. The PFA-QL was stable over time in the clinic sample, and in both samples, girls were reported to have poorer QoL than boys.
Conclusions - The PFA-QL and PFA-QL-PF are reliable and valid scales for use in both clinical and non-clinical populations. Unlike other available tools, they were developed and validated in the UK and thus provide a culture-specific choice for research, clinical trials and clinical practice in the UK. Validation in other countries is now needed.
Original languageEnglish
Pages (from-to)288-292
Number of pages5
JournalPaediatric Allergy and Immunology
Volume24
Issue number3
Early online date16 Apr 2013
DOIs
Publication statusPublished - May 2013

Keywords

  • adolescents
  • children
  • food allergy scale
  • parents
  • quality of life
  • reliability
  • validity

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    Knibb, R. C., Ibrahim, N. F., Petley, R., Cummings, A. J., King, R. M., Roberts, G., Erlewyn-Lajeunesse, M., & Lucas, J. S. A. (2013). Validation of the Paediatric food allergy quality of life questionnaire (PFA-QL). Paediatric Allergy and Immunology, 24(3), 288-292. https://doi.org/10.1111/pai.12060