‘It’s not an illness, it’s just bad luck’: The impact of anaphylaxis on quality of life in adults

Research output: Contribution to journalArticle

View graph of relations Save citation

Authors

Research units

Abstract

Background: An increasing number of adults are being diagnosed with anaphylaxis, but its impact on health-related quality of life (HRQol) is not known.

Objective: The aim of this study was to explore the impact of anaphylaxis on HRQoL of newly diagnosed adults.

Methods: Interviews were conducted with 13 adults (aged 40-71; 5 males) with anaphylaxis (meeting WAO diagnostic criteria) to drugs, food, venom or spontaneous anaphylaxis, recruited using purposive sampling from allergy clinics in Birmingham, UK. Data was transcribed verbatim and analysed using thematic analysis.

Results: Four themes were generated from the analysis: the journey from fear to frustration; the need to maintain a healthy identity; control over uncertainty; and the supportive role of others. Participants described their first experiences of anaphylaxis as frightening. Managing the condition was associated with frustration and anxiety, in part due to uncertainty regarding when anaphylaxis might occur. Participants did not consider their allergy as an illness and wanted to retain an identity as a healthy person. They felt a strong need to have control over their anaphylaxis so that it did not take over their lives. The support from others was extremely important, but a lack of understanding of anaphylaxis sometimes hindered that support.

Conclusions and clinical relevance: Anaphylaxis has an adverse impact on the HRQoL of adults irrespective of the cause. More information about anaphylaxis and its management from health care professionals may help patients gain a sense of control over their condition and reduce the worry and anxiety associated with it.

Request a copy

Request a copy

Documents

  • ‘It’s not an illness, it’s just bad luck’: The impact of 4 anaphylaxis on quality of life in adults

    Rights statement: This is the peer reviewed version of the following article: Knibb, R. C., Huissoon, A. P., Baretto, R. , Ekbote, A. , Onyango‐Odera, S. , Screti, C. , Newman, K. L. and Krishna, M. T. (2019), ‘It's not an illness, it's just bad luck’: The impact of anaphylaxis on quality of life in adults. Clin Exp Allergy. Accepted Author Manuscript, which has been published in final form at https://doi.org/10.1111/cea.13410.  This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

    Accepted author manuscript, 88 KB, PDF-document

    Embargo ends: 7/05/20

Details

Original languageEnglish
JournalClinical and Experimental Allergy
Early online date7 May 2019
DOIs
Publication statusE-pub ahead of print - 7 May 2019

Bibliographic note

This is the peer reviewed version of the following article: Knibb, R. C., Huissoon, A. P., Baretto, R. , Ekbote, A. , Onyango‐Odera, S. , Screti, C. , Newman, K. L. and Krishna, M. T. (2019), ‘It's not an illness, it's just bad luck’: The impact of anaphylaxis on quality of life in adults. Clin Exp Allergy. Accepted Author Manuscript, which has been published in final form at https://doi.org/10.1111/cea.13410.  This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

DOI

Employable Graduates; Exploitable Research

Copy the text from this field...