Researching experiences of cancer: the importance of methodology

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Abstract

This paper draws on contributions to and discussions at a recent MRC HSRC-sponsored workshop 'Researching users' experiences of health care: the case of cancer'. We focus on the methodological and ethical challenges that currently face researchers who use self-report methods to investigate experiences of cancer and cancer care. These challenges relate to: the theoretical and conceptual underpinnings of research; participation rates and participant profiles; data collection methods (the retrospective nature of accounts, description and measurement, and data collection as intervention); social desirability considerations; relationship considerations; the experiences of contributing to research; and the synthesis and presentation of findings. We suggest that methodological research to tackle these challenges should be integrated into substantive research projects to promote the development of a strong knowledge base about experiences of cancer and cancer care.

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Details

Original languageEnglish
Pages (from-to)232-237
Number of pages6
JournalEuropean Journal of Cancer Care
Volume11
Issue number3
DOIs
StatePublished - Sep 2002

    Keywords

  • research methodology , cancer care, patient experiences, experiences of care provision, user involvement

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