Exploring how parents of children with unilateral hearing loss make habilitation decisions: a qualitative study

Saira Hussain, Helen Pryce, Amy Neary, Amanda Hall

Research output: Contribution to journalArticle

Abstract

Objective
This study sought to explore the decision making needs of parents managing the hearing and communication needs of children with unilateral hearing loss.

Design
An inductive, qualitative method was used. The data were analysed using a constant comparative approach, consistent with Grounded Theory method.

Study sample
Twenty one families participated in interviews yielding data on twenty two children. Each of these families had at least one child with unilateral hearing loss. The age range of the children varied from four months to sixteen years old. All parents were English speaking and received care from National Health Service Audiology departments across the United Kingdom.

Results
Parents valued professionals’ opinions, but information provision was inconsistent. As their children mature, parents increasingly valued their child’s input. Parent-child discussions focussed on how different management strategies fit their child’s preferences. Parents were proactive in obtaining professional advice, and integrating this with their own iterative assessment of their child’s performance.

Conclusions
Decision making is an iterative process. Parents make nuanced decisions which aim to preserve a sense of what is normal for them. Clinicians need to recognise the parental view, including where it may contrast with a medicalised or clinical view.
Original languageEnglish
JournalInternational Journal of Audiology
Early online date13 Aug 2020
DOIs
Publication statusPublished - 13 Aug 2020

Bibliographical note

© 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group on behalf of British Society of Audiology, International Society of Audiology, and Nordic
Audiological Society
This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/),
which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way

Keywords

  • paediatric
  • parent
  • shared decision making
  • unilateral hearing loss

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