International multi-site survey on the use of online support groups in bipolar disorder

Rita Bauer, Jörn Conell, Tasha Glenn, Martin Alda, Raffaella Ardau, Bernhard T. Baune, Michael Berk, Yuly Bersudsky, Amy Bilderbeck, Alberto Bocchetta, Letizia Bossini, Angela M. Paredes Castro, Eric Y.W. Cheung, Caterina Chillotti, Sabine Choppin, Maria Del Zompo, Rodrigo Dias, Seetal Dodd, Anne Duffy, Bruno EtainAndrea Fagiolini, Miryam Fernández Hernandez, Julie Garnham, John Geddes, Jonas Gildebro, Ana Gonzalez-Pinto, Guy M. Goodwin, Paul Grof, Hirohiko Harima, Stefanie Hassel, Chantal Henry, Diego Hidalgo-Mazzei, Vaisnvy Kapur, Girish Kunigiri, Beny Lafer, Erik R. Larsen, Ute Lewitzka, Rasmus W. Licht, Anne Hvenegaard Lund, Blazej Misiak, Patryk Piotrowski, Scott Monteith, Rodrigo Munoz, Takako Nakanotani, René E. Nielsen, Claire O’Donovan, Yasushi Okamura, Yamima Osher, Andreas Reif, Philipp Ritter, Janusz K. Rybakowski, Kemal Sagduyu, Brett Sawchuk, Elon Schwartz, Ângela M. Scippa, Claire Slaney, Ahmad H. Sulaiman, Kirsi Suominen, Aleksandra Suwalska, Peter Tam, Yoshitaka Tatebayashi, Leonardo Tondo, Eduard Vieta, Maj Vinberg, Biju Viswanath, Julia Volkert, Mark Zetin, Peter C. Whybrow, Michael Bauer*

*Corresponding author for this work

Research output: Contribution to journalArticle

Abstract

Background: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient’s convenience. Prior research in bipolar disorder has reported value from online support groups. Aims: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking. Methods: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data. Results and conclusions: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.

Original languageEnglish
Pages (from-to)473-476
Number of pages4
JournalNordic Journal of Psychiatry
Volume71
Issue number6
Early online date11 Jul 2017
DOIs
Publication statusPublished - 2017

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Self-Help Groups
Bipolar Disorder
Internet
Surveys and Questionnaires
Research
Psychiatry
Language

Bibliographical note

This is an Accepted Manuscript of an article published by Taylor & Francis in Nordic Journal of Psychiatry on 11 July 2017 available online: http://www.tandfonline.com/10.1080/08039488.2017.1334819

Keywords

  • bipolar disorder
  • Internet
  • online support groups
  • self-help
  • survey

Cite this

Bauer, R., Conell, J., Glenn, T., Alda, M., Ardau, R., Baune, B. T., ... Bauer, M. (2017). International multi-site survey on the use of online support groups in bipolar disorder. Nordic Journal of Psychiatry , 71(6), 473-476. https://doi.org/10.1080/08039488.2017.1334819
Bauer, Rita ; Conell, Jörn ; Glenn, Tasha ; Alda, Martin ; Ardau, Raffaella ; Baune, Bernhard T. ; Berk, Michael ; Bersudsky, Yuly ; Bilderbeck, Amy ; Bocchetta, Alberto ; Bossini, Letizia ; Paredes Castro, Angela M. ; Cheung, Eric Y.W. ; Chillotti, Caterina ; Choppin, Sabine ; Zompo, Maria Del ; Dias, Rodrigo ; Dodd, Seetal ; Duffy, Anne ; Etain, Bruno ; Fagiolini, Andrea ; Fernández Hernandez, Miryam ; Garnham, Julie ; Geddes, John ; Gildebro, Jonas ; Gonzalez-Pinto, Ana ; Goodwin, Guy M. ; Grof, Paul ; Harima, Hirohiko ; Hassel, Stefanie ; Henry, Chantal ; Hidalgo-Mazzei, Diego ; Kapur, Vaisnvy ; Kunigiri, Girish ; Lafer, Beny ; Larsen, Erik R. ; Lewitzka, Ute ; Licht, Rasmus W. ; Hvenegaard Lund, Anne ; Misiak, Blazej ; Piotrowski, Patryk ; Monteith, Scott ; Munoz, Rodrigo ; Nakanotani, Takako ; Nielsen, René E. ; O’Donovan, Claire ; Okamura, Yasushi ; Osher, Yamima ; Reif, Andreas ; Ritter, Philipp ; Rybakowski, Janusz K. ; Sagduyu, Kemal ; Sawchuk, Brett ; Schwartz, Elon ; Scippa, Ângela M. ; Slaney, Claire ; Sulaiman, Ahmad H. ; Suominen, Kirsi ; Suwalska, Aleksandra ; Tam, Peter ; Tatebayashi, Yoshitaka ; Tondo, Leonardo ; Vieta, Eduard ; Vinberg, Maj ; Viswanath, Biju ; Volkert, Julia ; Zetin, Mark ; Whybrow, Peter C. ; Bauer, Michael. / International multi-site survey on the use of online support groups in bipolar disorder. In: Nordic Journal of Psychiatry . 2017 ; Vol. 71, No. 6. pp. 473-476.
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abstract = "Background: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient’s convenience. Prior research in bipolar disorder has reported value from online support groups. Aims: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking. Methods: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data. Results and conclusions: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0{\%} read or participated in support groups, chats, or forums for bipolar disorder (12.8{\%} of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.",
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Bauer, R, Conell, J, Glenn, T, Alda, M, Ardau, R, Baune, BT, Berk, M, Bersudsky, Y, Bilderbeck, A, Bocchetta, A, Bossini, L, Paredes Castro, AM, Cheung, EYW, Chillotti, C, Choppin, S, Zompo, MD, Dias, R, Dodd, S, Duffy, A, Etain, B, Fagiolini, A, Fernández Hernandez, M, Garnham, J, Geddes, J, Gildebro, J, Gonzalez-Pinto, A, Goodwin, GM, Grof, P, Harima, H, Hassel, S, Henry, C, Hidalgo-Mazzei, D, Kapur, V, Kunigiri, G, Lafer, B, Larsen, ER, Lewitzka, U, Licht, RW, Hvenegaard Lund, A, Misiak, B, Piotrowski, P, Monteith, S, Munoz, R, Nakanotani, T, Nielsen, RE, O’Donovan, C, Okamura, Y, Osher, Y, Reif, A, Ritter, P, Rybakowski, JK, Sagduyu, K, Sawchuk, B, Schwartz, E, Scippa, ÂM, Slaney, C, Sulaiman, AH, Suominen, K, Suwalska, A, Tam, P, Tatebayashi, Y, Tondo, L, Vieta, E, Vinberg, M, Viswanath, B, Volkert, J, Zetin, M, Whybrow, PC & Bauer, M 2017, 'International multi-site survey on the use of online support groups in bipolar disorder', Nordic Journal of Psychiatry , vol. 71, no. 6, pp. 473-476. https://doi.org/10.1080/08039488.2017.1334819

International multi-site survey on the use of online support groups in bipolar disorder. / Bauer, Rita; Conell, Jörn; Glenn, Tasha; Alda, Martin; Ardau, Raffaella; Baune, Bernhard T.; Berk, Michael; Bersudsky, Yuly; Bilderbeck, Amy; Bocchetta, Alberto; Bossini, Letizia; Paredes Castro, Angela M.; Cheung, Eric Y.W.; Chillotti, Caterina; Choppin, Sabine; Zompo, Maria Del; Dias, Rodrigo; Dodd, Seetal; Duffy, Anne; Etain, Bruno; Fagiolini, Andrea; Fernández Hernandez, Miryam; Garnham, Julie; Geddes, John; Gildebro, Jonas; Gonzalez-Pinto, Ana; Goodwin, Guy M.; Grof, Paul; Harima, Hirohiko; Hassel, Stefanie; Henry, Chantal; Hidalgo-Mazzei, Diego; Kapur, Vaisnvy; Kunigiri, Girish; Lafer, Beny; Larsen, Erik R.; Lewitzka, Ute; Licht, Rasmus W.; Hvenegaard Lund, Anne; Misiak, Blazej; Piotrowski, Patryk; Monteith, Scott; Munoz, Rodrigo; Nakanotani, Takako; Nielsen, René E.; O’Donovan, Claire; Okamura, Yasushi; Osher, Yamima; Reif, Andreas; Ritter, Philipp; Rybakowski, Janusz K.; Sagduyu, Kemal; Sawchuk, Brett; Schwartz, Elon; Scippa, Ângela M.; Slaney, Claire; Sulaiman, Ahmad H.; Suominen, Kirsi; Suwalska, Aleksandra; Tam, Peter; Tatebayashi, Yoshitaka; Tondo, Leonardo; Vieta, Eduard; Vinberg, Maj; Viswanath, Biju; Volkert, Julia; Zetin, Mark; Whybrow, Peter C.; Bauer, Michael.

In: Nordic Journal of Psychiatry , Vol. 71, No. 6, 2017, p. 473-476.

Research output: Contribution to journalArticle

TY - JOUR

T1 - International multi-site survey on the use of online support groups in bipolar disorder

AU - Bauer, Rita

AU - Conell, Jörn

AU - Glenn, Tasha

AU - Alda, Martin

AU - Ardau, Raffaella

AU - Baune, Bernhard T.

AU - Berk, Michael

AU - Bersudsky, Yuly

AU - Bilderbeck, Amy

AU - Bocchetta, Alberto

AU - Bossini, Letizia

AU - Paredes Castro, Angela M.

AU - Cheung, Eric Y.W.

AU - Chillotti, Caterina

AU - Choppin, Sabine

AU - Zompo, Maria Del

AU - Dias, Rodrigo

AU - Dodd, Seetal

AU - Duffy, Anne

AU - Etain, Bruno

AU - Fagiolini, Andrea

AU - Fernández Hernandez, Miryam

AU - Garnham, Julie

AU - Geddes, John

AU - Gildebro, Jonas

AU - Gonzalez-Pinto, Ana

AU - Goodwin, Guy M.

AU - Grof, Paul

AU - Harima, Hirohiko

AU - Hassel, Stefanie

AU - Henry, Chantal

AU - Hidalgo-Mazzei, Diego

AU - Kapur, Vaisnvy

AU - Kunigiri, Girish

AU - Lafer, Beny

AU - Larsen, Erik R.

AU - Lewitzka, Ute

AU - Licht, Rasmus W.

AU - Hvenegaard Lund, Anne

AU - Misiak, Blazej

AU - Piotrowski, Patryk

AU - Monteith, Scott

AU - Munoz, Rodrigo

AU - Nakanotani, Takako

AU - Nielsen, René E.

AU - O’Donovan, Claire

AU - Okamura, Yasushi

AU - Osher, Yamima

AU - Reif, Andreas

AU - Ritter, Philipp

AU - Rybakowski, Janusz K.

AU - Sagduyu, Kemal

AU - Sawchuk, Brett

AU - Schwartz, Elon

AU - Scippa, Ângela M.

AU - Slaney, Claire

AU - Sulaiman, Ahmad H.

AU - Suominen, Kirsi

AU - Suwalska, Aleksandra

AU - Tam, Peter

AU - Tatebayashi, Yoshitaka

AU - Tondo, Leonardo

AU - Vieta, Eduard

AU - Vinberg, Maj

AU - Viswanath, Biju

AU - Volkert, Julia

AU - Zetin, Mark

AU - Whybrow, Peter C.

AU - Bauer, Michael

N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Nordic Journal of Psychiatry on 11 July 2017 available online: http://www.tandfonline.com/10.1080/08039488.2017.1334819

PY - 2017

Y1 - 2017

N2 - Background: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient’s convenience. Prior research in bipolar disorder has reported value from online support groups. Aims: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking. Methods: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data. Results and conclusions: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.

AB - Background: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient’s convenience. Prior research in bipolar disorder has reported value from online support groups. Aims: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking. Methods: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data. Results and conclusions: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.

KW - bipolar disorder

KW - Internet

KW - online support groups

KW - self-help

KW - survey

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EP - 476

JO - Nordic Journal of Psychiatry

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SN - 0803-9488

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