Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: the HeLP study

Helen Pryce; Sian Karen Smith; Georgina Burns-O'Connell; Rachel Shaw; Saira Hussain; Jonathan Banks; Amanda Hall; Rebecca Knibb; Rosemary Greenwood; Jean Straus

doi:10.1136/bmjopen-2022-069363

Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: the HeLP study

Helen Pryce^*, Sian Karen Smith, Georgina Burns-O'Connell, Rachel Shaw, Saira Hussain, Jonathan Banks, Amanda Hall, Rebecca Knibb, Rosemary Greenwood, Jean Straus

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

INTRODUCTION: Worldwide, hearing loss is a significant public health issue and one of the most common chronic health conditions experienced by older adults. Hearing loss is associated with communication difficulties, social withdrawal, isolation and lower quality of life. Although hearing aid technology has improved significantly, the workload of managing hearing aids has increased. The aim of this qualitative study is to develop a novel theory of people's lived experience of hearing loss across the lifespan.

METHODS: Eligible participants will be young people and adults aged 16 years and above who have a hearing loss and carers/family members of people with a hearing loss. This study will use individual, in-depth face-to-face or online interviews. With participants' permission, interviews will be audio-recorded and transcribed verbatim. A grounded theory approach to concurrent data gathering and analysis will develop grouped codes and categories and link these to provide a novel theory to describe the experience of hearing loss.

ETHICS AND DISSEMINATION: The study was approved by the West of Scotland Research Ethics Service (approval date: 6 May 2022 ref: 22/WS/0057) and the Health Research Authority and Health and Care Research Wales Approval (approval date: 14 June 2022; IRAS project ID: 308816). The research will inform the development of a Patient Reported Experience Measure to improve the information and support given to patients. Findings will be disseminated through peer-reviewed articles and at academic conferences, as well as to our patient and public involvement groups, healthcare professionals, audiology services and local commissioners.

Original language	English
Article number	e069363
Number of pages	7
Journal	BMJ Open
Volume	13
Issue number	6
DOIs	https://doi.org/10.1136/bmjopen-2022-069363 https://doi.org/10.1136/bmjopen-2022-069363
Publication status	Published - 7 Jun 2023

Bibliographical note

Copyright © Author(s) (or their employer(s)) 2023. Published by BMJ. Re-use permitted under CC BY. https://creativecommons.org/licenses/by/4.0/
This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made.

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lived experience hearing loss
© Author(s) (or their employer(s)). Published by BMJ. Re-use permitted under CC BY. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made.
Final published version, 406 KBLicence: CC BY 4.0

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Pryce, H., Smith, S. K., Burns-O'Connell, G., Shaw, R., Hussain, S., Banks, J., Hall, A., Knibb, R., Greenwood, R., & Straus, J. (2023). Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: the HeLP study. BMJ Open, 13(6), Article e069363. https://doi.org/10.1136/bmjopen-2022-069363, https://doi.org/10.1136/bmjopen-2022-069363

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title = "Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: the HeLP study",

abstract = "INTRODUCTION: Worldwide, hearing loss is a significant public health issue and one of the most common chronic health conditions experienced by older adults. Hearing loss is associated with communication difficulties, social withdrawal, isolation and lower quality of life. Although hearing aid technology has improved significantly, the workload of managing hearing aids has increased. The aim of this qualitative study is to develop a novel theory of people's lived experience of hearing loss across the lifespan.METHODS: Eligible participants will be young people and adults aged 16 years and above who have a hearing loss and carers/family members of people with a hearing loss. This study will use individual, in-depth face-to-face or online interviews. With participants' permission, interviews will be audio-recorded and transcribed verbatim. A grounded theory approach to concurrent data gathering and analysis will develop grouped codes and categories and link these to provide a novel theory to describe the experience of hearing loss.ETHICS AND DISSEMINATION: The study was approved by the West of Scotland Research Ethics Service (approval date: 6 May 2022 ref: 22/WS/0057) and the Health Research Authority and Health and Care Research Wales Approval (approval date: 14 June 2022; IRAS project ID: 308816). The research will inform the development of a Patient Reported Experience Measure to improve the information and support given to patients. Findings will be disseminated through peer-reviewed articles and at academic conferences, as well as to our patient and public involvement groups, healthcare professionals, audiology services and local commissioners.",

author = "Helen Pryce and Smith, {Sian Karen} and Georgina Burns-O'Connell and Rachel Shaw and Saira Hussain and Jonathan Banks and Amanda Hall and Rebecca Knibb and Rosemary Greenwood and Jean Straus",

note = "Copyright {\textcopyright} Author(s) (or their employer(s)) 2023. Published by BMJ. Re-use permitted under CC BY. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. ",

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Pryce, H, Smith, SK, Burns-O'Connell, G , Shaw, R , Hussain, S, Banks, J, Hall, A , Knibb, R, Greenwood, R & Straus, J 2023, 'Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: the HeLP study', BMJ Open, vol. 13, no. 6, e069363. https://doi.org/10.1136/bmjopen-2022-069363, https://doi.org/10.1136/bmjopen-2022-069363

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T1 - Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK

T2 - the HeLP study

AU - Pryce, Helen

AU - Smith, Sian Karen

AU - Burns-O'Connell, Georgina

AU - Shaw, Rachel

AU - Hussain, Saira

AU - Banks, Jonathan

AU - Hall, Amanda

AU - Knibb, Rebecca

AU - Greenwood, Rosemary

AU - Straus, Jean

N1 - Copyright © Author(s) (or their employer(s)) 2023. Published by BMJ. Re-use permitted under CC BY. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made.

PY - 2023/6/7

Y1 - 2023/6/7

N2 - INTRODUCTION: Worldwide, hearing loss is a significant public health issue and one of the most common chronic health conditions experienced by older adults. Hearing loss is associated with communication difficulties, social withdrawal, isolation and lower quality of life. Although hearing aid technology has improved significantly, the workload of managing hearing aids has increased. The aim of this qualitative study is to develop a novel theory of people's lived experience of hearing loss across the lifespan.METHODS: Eligible participants will be young people and adults aged 16 years and above who have a hearing loss and carers/family members of people with a hearing loss. This study will use individual, in-depth face-to-face or online interviews. With participants' permission, interviews will be audio-recorded and transcribed verbatim. A grounded theory approach to concurrent data gathering and analysis will develop grouped codes and categories and link these to provide a novel theory to describe the experience of hearing loss.ETHICS AND DISSEMINATION: The study was approved by the West of Scotland Research Ethics Service (approval date: 6 May 2022 ref: 22/WS/0057) and the Health Research Authority and Health and Care Research Wales Approval (approval date: 14 June 2022; IRAS project ID: 308816). The research will inform the development of a Patient Reported Experience Measure to improve the information and support given to patients. Findings will be disseminated through peer-reviewed articles and at academic conferences, as well as to our patient and public involvement groups, healthcare professionals, audiology services and local commissioners.

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Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK: the HeLP study

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